Why we walk…

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Right now, babies need all the help they can get. Premature birth affects approximately 380,000 in the United States.  Many of you know, my own life has been affected by the birth of our son, Jonathan, at 27 weeks.  He is a survivor and a miracle.  He is our Jonathan; our “Gift from God.”

Unfortunately, there are also many others who don’t survive.  Also, many who survive, are in need of constant care and support as their babies grow and hopefully, thrive.

In a week, we will be joining the March for Babies here in the Chicago suburbs and walking alongside those who cared for our precious son, The AMITA NICU Warriors.

I walk for my own son, but I also walk for those who don’t survive prematurity and/or the birth defects they are born with.  We need more research to help babies survive and thrive.  Already, more babies are surviving and thriving that wouldn’t have 10 years ago.  Jonathan is the perfect example of this, and yet, there is much more to learn.  If you’d like to help, please make a secure donation or walk with us!  Together, we can help March of Dimes, so more babies can get the strongest start possible.

We honor Jonathan with this walk.  Look at this guy and his NICU team!  IMG_2564

We walk in memory of Jesse Amandus, who fought an amazing fight after his birth at 24 weeks, but could only be with us for 13 days.  IMG_6413

We walk in thanks for the care received in the NICU at AMITA Adventist Hinsdale Hospital, and all of the hands that have helped and continue to help us walk through this journey.  IMG_7561
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Please click here if you’d like to make a DONATION.  Thank You for all of your support, love and prayers!

A not so fun First…Hospitalization

Well, after having upper respiratory symptoms for about a week and fevers for 4 days, we thought it might be time for Jonathan’s pediatrician to have a look as well, specially as it had gotten to the point where I had to start giving nebs at home, which I’ve never had to do.

We were only 2 hours away from his pediatrician appointment and things got a little too uncomfortable to stay at home.  Jonathan would hold his breath to cough and his lips started turning blue.  I also went to change a diaper and he became ruddy in complexion and starting flailing in panic because he couldn’t breathe.  Off to the ER we went.

Thankfully, we were taken back fairly quickly.  In triage, we were doing pretty well with all of our numbers.  Unfortunately, it took over an hour for a nurse to come and assess him in our room and when they did as I suspected with his ruddy lips, his oxygen levels were a little lower than the desired level, 87%.  Oops.  Quickly though, Jonathan at that point was placed on oxygen.

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Our next step was for a Chest X-Ray.  I know no one ever likes to give a child radiation, but when trying to determine if you are dealing with pneumonia or not, it’s pretty much the only conclusive way to go.  Thankfully he did not have pneumonia, unfortunately though we were pretty sure we were dealing with a viral illness, he needed oxygen for hypoxia.  This was not something we were going to be able to manage at home at this point.  We don’t have oxygen or the monitoring capability at home.  So, we had our first overnight in the hospital since our discharge from the NICU.

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Much more comfortable in his room and with an efficient, sweet nurse who helped me, we were able to suction Jonathan to help him breathe better and then this happened! img_2965
Oxygen levels of 97% on Room Air (without oxygen)!  The bulb suction I have at home just wasn’t going deep enough or strong enough to clear out these super thick secretions to help him breathe better.  What a relief!  We kept the oxygen tubing on overnight just in case we needed to hook him back up, but for the first time in days, he got some good sleep.  img_2968
His numbers stayed up and he slept with a minimal incline on the bed.

Fast forward to morning, we found out he tested positive for RSV, which was not a surprise.  Thankfully, as he was able to keep his levels normal and did not require oxygen throughout the night, we were all comfortable going home yesterday.img_2976
The next morning.

View from his room.  Lurie Children’s Hospital.


When you start cleaning the cabinets with your Boogie Wipes, it’s definitely time to go!

and…He’s 2!!!

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Yes, you read it right! Jonathan is 2!  I can hardly believe it myself!  It seems like he was just born and we’re on the 2nd Birthday already.  My micropreemie is no longer a little baby…official Toddlerhood is upon us!

Currently, Jonathan’s favorite things are TRAINS and CLEANING!  Vacuums, dust pans, swiffers, mops…you name it, he’s in to it!  His activities include swimming, gymnastics, sing-a-long, and Mom Pop Tot interaction.  He also really enjoys going to church and singing and listening to the organ.  Here are some pictures from his Birthday Party…

Yes, his girlfriends are feeding him cake! Ha Ha Ha.

Jonathan with his Godfather, Uncle Mike

Playing with his friends.

His current stats are:

Height 32.28″
Weight 11.57KG/25lbs, 8oz
Head Circumference 19.65″

We are feeling so blessed and proud to be his parents!

I’m still here!

Hi Friends!

I’m still here, with nary a moment to write most days, but I try to read late at night before I pass out from chasing my growing beautiful boy.

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Jonathan is becoming a little boy.  He is in Swim on Mondays, Gymnastics on Thursdays and a Mom Pop Tot Class (learning through play) on Fridays!  I can barely keep up!  We are still getting some nice weather here in Chicago.

Certainly enough that Jonathan got to work on digging some dirt the other day and had so much fun with cousin Charlie!

Most recently, we had a visit from Lola (grandma in Tagalog-a Philippine dialect), and J really just loves her!  We’re wishing they still lived here in Chicago and they’re wishing we’d hurry up and move to Florida!

Can I get a “Go Cubs Go!” out of it?!?!  YES!!!! We’re going to the World Series!!!!!

Of note, J had to graduate to a Toddler Bed. He’s learned to swing his leg over a bar and spin in Gymnastics and decided to try that out on his crib!  Oh, the joys of toddler-hood!!!  I was hoping to keep the crib until he was 2, but what can I say?  My micropreemie is catching up to his actual age in gross motor skills and has other ideas!

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Good thing once he’s out, he’s OUT!  Blessings to you and yours!  I’ll try to do better at updating!