A not so fun First…Hospitalization

Well, after having upper respiratory symptoms for about a week and fevers for 4 days, we thought it might be time for Jonathan’s pediatrician to have a look as well, specially as it had gotten to the point where I had to start giving nebs at home, which I’ve never had to do.

We were only 2 hours away from his pediatrician appointment and things got a little too uncomfortable to stay at home.  Jonathan would hold his breath to cough and his lips started turning blue.  I also went to change a diaper and he became ruddy in complexion and starting flailing in panic because he couldn’t breathe.  Off to the ER we went.

Thankfully, we were taken back fairly quickly.  In triage, we were doing pretty well with all of our numbers.  Unfortunately, it took over an hour for a nurse to come and assess him in our room and when they did as I suspected with his ruddy lips, his oxygen levels were a little lower than the desired level, 87%.  Oops.  Quickly though, Jonathan at that point was placed on oxygen.

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Our next step was for a Chest X-Ray.  I know no one ever likes to give a child radiation, but when trying to determine if you are dealing with pneumonia or not, it’s pretty much the only conclusive way to go.  Thankfully he did not have pneumonia, unfortunately though we were pretty sure we were dealing with a viral illness, he needed oxygen for hypoxia.  This was not something we were going to be able to manage at home at this point.  We don’t have oxygen or the monitoring capability at home.  So, we had our first overnight in the hospital since our discharge from the NICU.

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Much more comfortable in his room and with an efficient, sweet nurse who helped me, we were able to suction Jonathan to help him breathe better and then this happened! img_2965
Oxygen levels of 97% on Room Air (without oxygen)!  The bulb suction I have at home just wasn’t going deep enough or strong enough to clear out these super thick secretions to help him breathe better.  What a relief!  We kept the oxygen tubing on overnight just in case we needed to hook him back up, but for the first time in days, he got some good sleep.  img_2968
His numbers stayed up and he slept with a minimal incline on the bed.

Fast forward to morning, we found out he tested positive for RSV, which was not a surprise.  Thankfully, as he was able to keep his levels normal and did not require oxygen throughout the night, we were all comfortable going home yesterday.img_2976
The next morning.

View from his room.  Lurie Children’s Hospital.


When you start cleaning the cabinets with your Boogie Wipes, it’s definitely time to go!

and…He’s 2!!!

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Yes, you read it right! Jonathan is 2!  I can hardly believe it myself!  It seems like he was just born and we’re on the 2nd Birthday already.  My micropreemie is no longer a little baby…official Toddlerhood is upon us!

Currently, Jonathan’s favorite things are TRAINS and CLEANING!  Vacuums, dust pans, swiffers, mops…you name it, he’s in to it!  His activities include swimming, gymnastics, sing-a-long, and Mom Pop Tot interaction.  He also really enjoys going to church and singing and listening to the organ.  Here are some pictures from his Birthday Party…

Yes, his girlfriends are feeding him cake! Ha Ha Ha.

Jonathan with his Godfather, Uncle Mike

Playing with his friends.

His current stats are:

Height 32.28″
Weight 11.57KG/25lbs, 8oz
Head Circumference 19.65″

We are feeling so blessed and proud to be his parents!

I’m still here!

Hi Friends!

I’m still here, with nary a moment to write most days, but I try to read late at night before I pass out from chasing my growing beautiful boy.

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Jonathan is becoming a little boy.  He is in Swim on Mondays, Gymnastics on Thursdays and a Mom Pop Tot Class (learning through play) on Fridays!  I can barely keep up!  We are still getting some nice weather here in Chicago.

Certainly enough that Jonathan got to work on digging some dirt the other day and had so much fun with cousin Charlie!

Most recently, we had a visit from Lola (grandma in Tagalog-a Philippine dialect), and J really just loves her!  We’re wishing they still lived here in Chicago and they’re wishing we’d hurry up and move to Florida!

Can I get a “Go Cubs Go!” out of it?!?!  YES!!!! We’re going to the World Series!!!!!

Of note, J had to graduate to a Toddler Bed. He’s learned to swing his leg over a bar and spin in Gymnastics and decided to try that out on his crib!  Oh, the joys of toddler-hood!!!  I was hoping to keep the crib until he was 2, but what can I say?  My micropreemie is catching up to his actual age in gross motor skills and has other ideas!

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Good thing once he’s out, he’s OUT!  Blessings to you and yours!  I’ll try to do better at updating!

Why I March…

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Many of you know that we gave birth to this beautiful baby boy at 27 weeks last February.  This precious boy was 1 pound, 15 ounces at birth.  This picture is the first time I was finally able to see my little boy.  I was too sick to see him for the first 2 days.  He is 3 days old here.  Prematurity is near and dear to our hearts.  After spending 3 months in the NICU, we witnessed so much.  We were certainly blessed to have not only survived such an early birth, but to have thrived.  Many babies are surviving such young gestation because of the work of March of Dimes.  But, there are many that don’t and babies who struggle even more than my beloved boy.

In honor of these babies, I am marching in the March of Dimes walk to help raise money for babies who struggle with prematurity, babies born with birth defects, and to raise funds, awareness and research for early infant mortality.

I walk to honor my son.

I walk in memory of Baby Jesse Amandus.

I walk in Thanks to Adventist Hinsdale Hospital and all of the hands who have played and continue to play a role in our journey.  They not only help us survive, but to thrive.  As always, a special shout out to CHN for all of the continued love and support.

If you or anyone you think may be interested in supporting our cause.  I invite you to visit our page (simply click on the link):

March for Babies

Thank You!!!

 

My little man is 9 months (6 months corrected age)!!!

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I can’t believe how time has flown!  Jonathan is now 9 months old/6 months corrected age for prematurity.  He is 26 inches long (23%) and weighs in at 15lb 3oz (6%)!  Hooray!  The pediatrician was impressed with Jonathan’s growth!

Jonathan is still hitting all of his targets for development.  We don’t visit the NEST clinic (developmental clinic) until December.  Then he’ll have an updated evaluation from all of the different therapies.  He rolls over.  Loves to babble and has just learned to blow raspberries.  He has a sweet, sweet laugh that I get to hear everyday.

I still haven’t had a first day back to work.  I officially left my full time position, but the hospital kept me on a casual status (relief).  This is great for me to keep my foot in the door.  Right now, I just can’t fathom being away from the baby for 14 hours at a time minimum.  It feels strange not to work, but being at home with a baby is probably the hardest work I’ve ever done….but the most rewarding too.  I would hate to miss seeing my little miracle grow.  Something new seems to happen every day.  Hope all is well in your worlds!  I try to keep everyone updated more frequently!

Jonathan’s 8 Months!

Wow!  I can’t believe how time flies!  Jonathan is 8 months (5 months corrected age) already!  He’s even on the grid for his height and weight (corrected age), 25th percentile for both!  He amazes me every day!

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Jonathan rolls around, army crawls and scoots across the bed and floor, and is quite vocal these days.  He even, most recently, cut his first tooth!

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As soon as I get a better picture, I’ll post it, but this is what I have for now!  At 5 months corrected, that’s pretty great!  He tried peaches most recently and really enjoyed those!  I love our food processor and Vitamix.  Making baby food is so easy with them!  Let me know if any of you need tips or recipes out there.

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Baseball is in the playoffs and we’re rooting for the Cubs!  Here we are showing off our duds!

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People say he looks a lot like me, but he’s got quite a bit of Daddy too!  Most recently they started a Mommy group in our building, which is great.  It’s nice to have other Moms to relate to the life of motherhood!  Here we are at our first get-together in our Park.

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I think I might be the “oldest” one in the group, ha ha! That’s a new one for me! I still feel so young!  On that note, I hope everyone’s having a great fall and enjoying the changing colors, if you’re in such a climate!  More posts to come soon.  I felt the struggle with going back to work deserved it’s own post.  It’s a difficult choice for any parent to make, but hard for me because of me little preemie miracle.  Have a great day friends!

October

6 Months – We’ve made it!

We’re celebrating!  Jonathan has been with us for 6 months!  It’s been a long road, but he is doing so well!  We went to the pediatrician this week and he is now weighing in at 11lb 8.5oz.  Still a little small for his corrected gestational age, but she was happy with his growth in between visits!

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He’s helping Dr. McCabe by hanging on to her stethoscope!  Besides growing, Jonathan is now teething!  I wasn’t sure at first, but it’s confirmed by his pediatrician.  He has the “all-clear” to begin eating food as soon as he’s ready.  He’s just about there. She thinks he’ll be ready before his next appointment.  I’m actually really looking forward to making his baby food!

We’ve also found that he just loves elephants.  It’s adorable.  He gets so happy when he sees one.  Here he is talking to one of his best buddies…ha ha ha.

We are blessed.

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5 months! ….but it’s really 11 weeks

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This little guy is eating, eating eating…which means he’s growing, growing, growing!!!  His colic seems to be slowing improving.  It’s usually a 1 hour window in the evenings instead of 6 hours like it was in the beginning.  I pray none of you having babies in these next few months have to wrestle with it, but if you do….give a shout.  It’s more about trying different things until you find what works, but the emotional toil it takes on Mommy and Daddy is huge.  I didn’t realize how much it was also affecting my spouse until we both had meltdowns.  I’ve decided they make babies cute so that you can’t help but smile and LOVE when you look at them!

There is a lot to love about my child though.  Here are my favorite moments, in no particular order….

I love when he purrs (coos) that little sound while nursing.

I love that cheeky grin he gives me when he can see I’m coming.

I love that he currently behaves at church.

I love how he just looks for the boob in his sleep and sometimes gets a mouthful of shirt…but keeps sucking (ha ha ha)

I love how much joy others get just by knowing his story and seeing him in person.  This makes me feel so blessed and like my child is anointed.  He has given many so much faith…including Mommy & Daddy.

Jonathan has such a personality, it’s so fun and to think he’s not even 3 months old (corrected age) yet!  Thank you all for your outpouring of love and support.  We don’t have official measurements, but he’s more than 10 pounds and is measuring at least 22 inches.  I’ll give you an update after he sees his pediatrician next month.

In the meantime, Jonathan had his first pool party this week, so I thought I’d share a few pictures!

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A Celebration and a Baptism

Announcement

Our story in a nutshell, but it’s so much more.

We had a beautiful celebratory Father’s Day weekend.  A first, for us!  Saturday we had a “Welcome Home” party in lieu of  a shower for our little miracle, our gift from God.  We are overwhelmed by the love and support people continue to give us as well as their presence at these events.  We are so blessed.

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Another mommy calming the wee one!

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Enjoying the festivities…as long as he’s constantly fed!  It truly amazes me how much this guy eats!  His favorite is still Mommy’s milk!  By the way, breastfeeders to be…I love these bottles!  They’re great for transitioning back and forth from bottle to boob or boob to bottle!

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Preparing for his baptism…

Come to me, come. Let the little children come.  Come and receive the kingdom of God.

May all of you find the blessings and promises of God as I have this first Father’s Day weekend.

We’ve made it to 4 months!!!

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As of today, Jonathan is officially 4 months old (actually) and 1 month old (corrected gestational age).  He is weighing 7lb, 10oz!!!!  It’s so exciting to see him grow.

He’s slowly but surely getting better with the colic.  As the pediatrician recommended, we started him on probiotics (Gerber Soothe), and we do think it’s helping.  I don’t know what I would do without the baby carrier, rocking chair, and the occasional glass of wine!  Yes, I’m breastfeeding and everyone has said it’s ok!  Don’t pump and dump.  Have an occasional glass of wine.  The most exciting thing lately is that Jonathan has finally figured out how to nurse laying down, so I don’t have to fully wake myself up at night anymore!   I put him in bed with me, put the boob out nearby and he does the rest!  I’m so glad I didn’t give up on it!!!

For now, we are in the midst of planning a Welcome Home party (since we never had a chance to have a shower) and his christening, so more pictures will follow this month.  We are so blessed.  Thank you all for your encouragement and keeping us in your thoughts and prayers!